UNBC Multiple Sclerosis Student Support Club

RED SHIRT DAY With Colton Carrita!

Date: Wednesday, May 29, 2024

Time: 11:00 am – 1:00 pm

Location: UNBC Northern Undergraduate Student Centre, Room 6-250

Red Shirt Day for AccessAbility and Inclusion is when people across Canada wear red to show their support and celebrate the achievements of Canadians living with disability.

Join us to hear from our keynote speaker, Colton Carrita, a student in the Northern Medical Program and one of BC Wheelchair Basketball’s top athletes.

Light refreshments will be available.

Sponsored by SPARC, UNBC Human Resources, and the UNBC Accessibility Ambassadors Initiative.

Questions? Please contact Dr. Rheanna Robinson, Department of First Nations Studies.

The International Progressive MS Alliance, in collaboration with MS organisations across the world, is conducting a global survey to find out how people affected by MS feel about being involved in research – including being an author of scientific publications.
Are you affected by multiple sclerosis (MS)?
Do you want people with MS to be credited for their input in research (science with patient input)?
There is growing global consensus among scientists and clinicians regarding the importance of involving people affected by MS (PaMS) in research. By sharing your experience of living with MS, this ‘experiential’ form of knowledge can be integrated with scientific knowledge and lead to better research outcomes for everyone.

Engaging PaMS in the phases of the research where their engagement is instrumental in achieving the mission and agenda of the research initiatives and making science meaningful to society.

If you are interested in taking part, please click the link here: https://web.norstatsurveys.com/survey/selfserve/53c/2307202?list=100
The survey is available in 8 languages: Arabic, English, French, German, Italian, Polish, Spanish and Swedish.
The survey will take around 10 minutes to complete, and the deadline is 31 August 2023.
If you have any questions, please contact the research team at: [email protected]

The survey has been developed by PaMS in collaboration with the Progressive MS Alliance, the Italian MS Foundation (FISM) on behalf of the MULTI-ACT EU Project and EngageMinds HUB . The MULTI-ACT project developed a holistic management model that enables effective cooperation of all stakeholders from research to care and aims to leverage the experiences of patients and other stakeholders and increase their ability to co-create and participate in decision-making processes in healthcare research.

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The UNBC MS Student Support Club (UMSSC) has actively hosted tables and information sessions on campus to raise awareness among students and faculty members about Multiple Sclerosis.
Read more about how clubs like UMSSC have helped and hope to meet the needs of MS clients living in the North
Link available in our bio.

The Multiple Sclerosis Society of Canada is pleased to announce a new partnership with SPIRIT Club. SPIRIT Club is an online gym where with a membership you can access all of their live and recorded virtual wellness, exercise and fitness programming (e.g., yoga, Zumba, fitness, meditation, nutrition, etc.).

The MS Society has secured a group membership with SPIRIT Club and by registering with us you will receive a link that will allow you to create a free membership account with SPIRIT Club, giving you access to all of their virtual programming. All of SPIRIT Clubs classes are taught by trained / certified professionals, and most are offered with multiple levels of difficulty including a seated option.

Please note this program is only available to individuals diagnosed with multiple sclerosis, an allied disease or their family caregiver. If you do not qualify for the MS Societies group membership with SPIRIT Club you can visit their website and take out your own individual membership.

All information here: https://mssociety.ca/events/1456/spirit-club?force_lang=en_CA&utm_source=divisionnews&utm_medium=email&utm_campaign=Programs
(Link in bio)

November is Indigenous Disability Awareness Month (IDAM). Created in 2015 by the [British Columbia Aboriginal Network On Disability Society (BCANDS)] celebrates the achievements and contributions Indigenous people living with disabilities make despite any barriers and challenges they may experience.

The Indigenous population in Canada is a culturally and geographically diverse group that includes First Nations, Métis and Inuit people. According to Statistics Canada’s 2017 Aboriginal Peoples Survey, Indigenous people experience a higher rate of disability than non-Indigenous Canadians. For Indigenous people living with a disability, the challenges don’t end at navigating their daily lives as they must also manage systemic discrimination and barriers when accessing healthcare and support services.

“When I was first diagnosed with MS and for years afterwards, everyone – neurologists included - kept saying to me, because I'm Métis (or mixed blood ancestry), ‘This is likely coming from your European ancestry, not from your Métis side’. So really categorizing MS as a ‘white person disease’. I’ve heard from other Indigenous people with MS that they have had similar experiences or have been told ,"You may have something other than MS because you are Indigenous.”
- Dr. Rheanna Robinson, professor at the University of Northern BC, diagnosed with MS in 1997

This , we want to address the inequities in disability support, management, treatment, and care in the Indigenous population to ensure all Canadians with MS can live a full and happy life.

Read more of Rheanna’s story and about Indigenous Disability Awareness Month in MS Society latest blog post(link available in our bio)

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