Teammason2021
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The Cost to Care — hear the battle cry God of heaven 🐲⚖️🥄✂️🙏🏻
For years, I worked two full-time jobs.
One paid.
One didn’t.
The unpaid one was caregiver administration. The hidden JOB in disability services in order to manage and maintain services.
Coordinating staff.
Managing payroll.
Writing plans.
Tracking data.
Attending appointments.
Responding to crises.
Navigating systems.
Fighting for services.
I worked overtime trying to keep my career alive while carrying the invisible workload required to support my son.
People see disability benefits.
They don’t see the unpaid labour behind them.
They don’t see the careers interrupted.
They don’t see the health lost.
They don’t see the years spent working just to get to work.
The cost to care wasn’t just my time.
It was my scissors.
My career.
My health.
And now, 12 years later, I am rising to respond to ADAP, the employment. I am again still asking Alberta to recognize the hidden administrative burden families carry every single day.
It’s time.
Families should have the option of Family Managed Services when it is best for their loved one, without being forced to carry a crushing administrative burden. The care didn’t almost break me—the paperwork, coordination, payroll, staffing crises, and endless unpaid work did. ✂️🐉 ADAP asks about my limitations, who asks about the system’s?
Thank you .dawn91 for putting it into music ❤️
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05/31/2026
Pullover Pal to order and customize and medical or safety needs on seatbelts!!!
Pullover Pal Pullover Pal is all about Awareness, with our products.
05/06/2026
Welcome to Kind Behaviour 💙
I’m happy to share that Kind Behaviour is officially here.
Kind Behaviour reflects the values that matter most to me: kindness, compassion, respect, practical support, and meeting children and families where they are.
I’m grateful to begin this next chapter and thankful for the encouragement and support I’ve received along the way.
05/01/2026
PDD families—this is for you.
We’re expected to show outcomes, but not always how to track real day-to-day support in a measurable way.
If you’re navigating ISP’s, BSP's, FMS, agencies or outcome planning, join the conversation in PDD Alberta – Family Access & Reality TeamMason2021™
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04/20/2026
The Real Cost of Being a "Sandwich Caregiver"
Jenn Thompson is caring for "both her child and her mother" — while navigating a system with no coordinated support.
These are real, out-of-pocket costs:
$15,000 legal fees (upcoming case conference)
$120/month for 2 years for essential supplements
$4,800+ paid personally for dentures
Ongoing credit card debt and interest
$1,000+ in interest in the last year alone
For two years, Jenn covered essential care costs herself while navigating delays, conflict, and system gaps. Now, those costs are compounding.
At the same time:
Care needs are increasing
Support is not
The system is not coordinating any of it
The caregiver becomes the system.
Support
This is not charity.
This is covering real costs created by system gaps.
👉 Click here to donate to Jenn’s GoFundMe https://gofund.me/8059ac3ea
Learn about the 6% of Canadian Sandwich Caregivers here:
https://www150.statcan.gc.ca/n1/pub/89-652-x/89-652-x2024002-eng.htm
Image: Generated using AI.
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