Harry's House

In the first article in this series, I talked about what it’s like when care never really stops.

But there’s another side to that.

Across Australia, families are doing an extraordinary amount of care every day, often quietly and without recognition. Overnight monitoring, managing seizures, hospital stays, coordinating appointments, stepping in when supports fall short… this is what keeps things going.

The NDIS relies on families continuing in this role, but we don’t often talk about what that really looks like, or what happens when it becomes too much.

This is the second article in the “When Care Never Stops” series, looking at the role families play and why respite matters.

When Care Never Stops Article 2 of the “When Care Never Stops” series. In the first article in this series, I talked about the reality that for many families caring for children with complex disability, care never really stops.

Over the past few weeks we have been sharing a short series of articles about restrictive practices in the NDIS.
The aim has been to help families understand why some everyday supports can fall within the restrictive practice framework, and why providers sometimes need to follow processes that may feel unfamiliar.

In our final article in the series we step back and look at the bigger picture, the balance between protecting rights and delivering safe, practical care for children and young people with complex needs.

You can read the final article here. https://www.linkedin.com/pulse/restrictive-practices-ndis-finding-balance-between-rights-barker-86fac

Next we will begin a new series exploring another topic many families talk to us about, respite.
For families supporting children with complex disability, respite is often the support that allows families to keep going. Yet it is sometimes treated as though it is optional.
So why is something so essential sometimes viewed as a luxury?

Restrictive Practices in the NDIS: Finding the Balance Between Rights, Safety and Care In our previous articles we explored how restrictive practices are defined within the NDIS, why ordinary care can sometimes fall into this category, and why families are often surprised to learn that something they have safely done for years may now require documentation and oversight. These rules e