International Rett Syndrome Phenotype Database (InterRett)

Dr Helen Leonard meeting with MECP2 Duplication families in Tokyo, Japan.

Our team currently has an International MECP2 Duplication Database under development.

Season's Greetings everyone!

Our heartfelt thanks to the many amazing families who have contributed to the International Rett Syndrome Database during 2018 and are helping us to continue to build important knowledge about this disorder.

If we haven’t been in touch with you and your family this year and you’d like to contribute further, please do make contact with Dr Helen Leonard at:

Email [email protected] or [email protected]

or Text Helen at 61419956946

or Message us on Facebook

Happy 2018 to all of our InterRett families!

We are very excited to share our most recent InterRett newsletter with you all. Some families may have already received copies of our newsletter via email. Please feel free to share this digital copy with other families!

If you are interested in joining our mailing list, participating in InterRett, or if your contact info, post mail or email address have recently changed, please send us an inbox message or contact us at: [email protected]

Helen Leonard with Claude Buda from the Rett Syndrome Association of Australia and Tam and Inge from the Rett Syndrome Comprehensive Research Institute in China preparing for the 5th European Rett Syndrome Congress in Berlin, Germany.