Purple for Rett

Day 8 💜

Walking and balance can be extremely difficult for children with Rett. Some are able to walk for a time, while others may lose mobility altogether.

These challenges are caused by how Rett affects the brain’s ability to control movement and coordination. Muscle stiffness, loss of motor planning, and scoliosis can also make walking harder over time.

But with the right support — physiotherapy, mobility aids, and daily care — progress and independence are still possible. Every step forward matters. 💜

Day 7 💜

Breathing & Epilepsy

Rett syndrome doesn’t just affect movement and speech — it also impacts the body in complex ways.

Many children experience seizures (epilepsy), which can range from mild to severe and often require daily medication.

Breathing can also be affected:
▫️ Periods of rapid breathing
▫️ Holding breath
▫️ Irregular patterns, even during sleep

These challenges can be frightening for families and add extra layers of care.

Rett is more than just one condition — it affects the whole body, and that’s why awareness and research are so important 💜

Day 6 💜

A key sign of Rett syndrome is the loss of hand skills — things like holding toys, feeding, or pointing.

Instead, children often develop repetitive movements such as:
▫️ Wringing
▫️ Clapping
▫️ Tapping
▫️ Rubbing

It’s known as one of the hallmark signs of Rett Syndrome

Day 5 💜 The Science (MECP2 Gene)

Rett syndrome is caused most often by a change (mutation) in the MECP2 gene, found on the X chromosome.

This gene is responsible for making a protein that’s essential for normal brain function and development. When the gene doesn’t work as it should, the brain can’t properly regulate many of the signals that control learning, movement, speech, and other vital functions.

Because girls have two X chromosomes, they usually survive with Rett — one working copy of the gene can still provide some function. For boys, who only have one X chromosome, MECP2 mutations are often more severe and sometimes fatal early in life.

Right now, there is no cure, but research into gene therapy, protein replacement, and other treatments is ongoing — bringing real hope for the future.

Every time we raise awareness, share posts, and talk about Rett, we help fuel progress towards that breakthrough. 💜