Benign Essential Blepharospasm Research Foundation

As the Medicare public comment period comes to a close on May 16, we wanted to send one simple follow-up reminder.

We know our advocacy outreach has been more active than usual in recent weeks. BEBRF does not typically send messages this frequently, but this issue is simply too important not to keep our community informed and engaged. We did not want anyone to miss the opportunity to participate before the deadline.

Did You…?

✔ Sign the petition?: http://bit.ly/4dabOM8
✔ Add a personal comment, story, or short video message?
✔ Share the petition with 2- 3 friends or family members?
✔ Contact your U.S. Senators? https://www.senate.gov/senators/
✔ Contact your U.S. Representative? https://www.house.gov/representatives/find-your-representative

Every action helps reinforce the importance of protecting access to individualized blepharospasm treatment and physician-directed care.

Thank you for continuing to stand with the blepharospasm community during this important moment.

Please Note: Signing, commenting on, and sharing the petition is completely free.

During the signing process, Change.org may offer supporters the option to make a contribution to help promote the petition on its platform.

Those contributions go directly to Change.org and not to BEBRF.

If you would like to support BEBRF directly, you can do so by clicking here: https://bebrf.app.neoncrm.com/forms/3

📊 Treatment Survey - Your Experience with Access and Medicare

We’re collecting patient input on experiences with treatment access under Medicare.

👉 Take 2 minutes to share your experience: https://app.polling.com/forms/21dc8ee3-27fb-44b9-9895-fe3e0e6fc3a9/share

Your responses help us better understand real-world access and coverage experiences.

Thank you for sharing your perspective.

Survey Share your opinion by completing this survey on Polling.com.