AXYSGenetic.org

UPCOMING WEBINAR
Register here: https://us06web.zoom.us/webinar/register/3417817959289/WN_DT6_Ks5WS8-HwKXShsSxww

WhY EXercise: Promoting Physical Activity in X/Y Variations

Monday, July 27, 2026
8PM Eastern | 7PM Central | 6PM Mountain | 5PM Pacific
On Zoom

Speakers: Drs. T. Zachary Huit and Jaclyn Papadakis | Ann & Robert H. Lurie Children’s Hospital of Chicago

Physical activity is essential for all youth, and it is especially important for those with X and Y variations. The team from Ann and Robert H. Lurie Children’s Hospital of Chicago will highlight the importance of staying active, along with practical strategies for families to encourage movement and engagement. Attendees will gain helpful tips for fostering participation in ways that feel accessible and enjoyable for the whole family. The team will also discuss KidS Camp, an innovative program designed to promote physical activity, build confidence, and support positive self-concept in adolescents with Klinefelter syndrome.

*This webinar will be recorded and the presentation made available on our YouTube channel.

Register to receive instructions on how to join the webinar and for automatic reminders delivered to your inbox.

Do you have questions about physical activity in individuals with X and Y chromosome variations?

Our speakers would be delighted to receive them in advance. They will tailor their presentation to address the topics and concerns that matter most to you. Please send your questions to [email protected] by Friday, July 17.

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The July 2026 AXYS Newsletter is here! https://genetic.org/newsletters/

This month we highlight opportunities to connect, learn, and strengthen the X&Y chromosome variation community through upcoming support group meetings and our next educational webinar: "WhY EXercise: Promoting Physical Activity in X/Y Variations." The newsletter also encourages participation in research initiatives that advance understanding of X&Y chromosome variations and includes updates on both the 2027 AXYS Community Conference in Chicago and the 2026 Trisomy X Retreat.

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AXYS Trisomy X Retreat
November 13-15, 2026
Kanuga Inn & Lodging
Blue Ridge Mountains, NC
Register: https://axysgenetic.networkforgood.com/events/101186-2026-axys-trisomy-x-retreat

Join us for a peaceful and uplifting weekend designed specifically for individuals with Trisomy X. Set in the serene surroundings of Kanuga Inn & Lodging, this retreat offers a safe, welcoming space to relax, connect, and recharge. Hosted in collaboration with AXYS, this experience is open to participants ages 13 and older - intentionally created to be inclusive of both teens and adults. Whether you're seeking meaningful connections, personal growth, or simply time to unwind, this retreat meets you where you are. Enjoy a thoughtfully paced weekend that may include creative art sessions, gentle outdoor activities, games, and opportunities for connection with others who share similar experiences. With a focus on restoration, community, and self-expression, this retreat is a chance to be yourself - fully and freely.

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AXYS will be represented at The 18th Philadelphia Prenatal Conference, June 4-6, 2026! If you're attending, be sure to stop by our table and say hello to the AXYS team!

Learn more about this conference: https://philapregnancycenter.com/conference-homepage

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