Austin Darr Updates

Austin is doing well! He went back to DTA and completed his first full week Friday. His wound is healing nicely as well.

We saw the GI last week and will follow up in 2 months. For now no changes. He will remain on pump most likely for 6 months before we can start to transition back to bolus feedings. He explained it takes time for intestinal track to heal after a resection. Especially with what he went through.

Next appt is follow up with the surgeon where we will ask what happens with the mesh that was sewn in?

He has only put on 6 lbs so weight is 71. Again, his body is working hard to heal so weight gain will be slow.

We are very happy to see smiles and more energy every day!

God is gracious and merciful! 💚💜

We got Austin out of the house today! Went to the Abilities Expo in Scottsdale and met up with his friend Rylee and her parents Tom and Linda. Afterwards, we all had lunch at The Thumb, a yummy BBQ place.

Rylee was also in the hospital for over 3 weeks (their stays overlapped) and both are working on recovery.

Saw a cool heart cloud on the way home. It was good day for all of us! 🧡

Day 19

We finally got the GJ tube placed this afternoon. When Austin has had four hours of feeding on it then we can remove the NG tube from his nose. That should take place sometime between 9 and 10 PM.

Discharge should happen tomorrow or Friday once we have everything in place!

We need to schedule Home health to come in and do the wound VAC and there’s some confusion on that so please pray for patience and communication.

We are also waiting for feeding pump supplies.

Once we have everything set, we can go home!

As we said before, it will be a long recovery at home, but we will be happy once we are all together again! 

💚💜