Lyrixx Cosplay and Modeling

If you didn’t know, I have an Instagram too!

https://www.instagram.com/vicksipixiecosplay?igsh=MXQ5Z2p0Zm9odTV1OA%3D%3D&utm_source=qr

“I believe you,” she said.
I’m still processing if this is it. “I have all these symptoms that I believe is hEDS, and then these that look really like pots and MCAS, but I’m not officially diagnosed,” I said.
“Don’t worry, I saw everything and we’re going to diagnose you today.”
We went over everything. How gut, joints, mind (the whole body really) were connected.
I put down the phone after two hours. The longest I’d ever talked to anyone in the medical field.
It felt like internet dial up was playing in my head as I processed. Did that really happen? Did she really just listen and hear everything I’ve been trying to say? Did she really give me ideas on how to find relief based on everything instead of treating each symptom as a separate problem? The allergies to everything outside, dislocating ribs if I throw up while sick, not being able to tolerate heat. Everything.
What a far cry from my first appointment when my previous doctor asked as they walked through the door, “so have you been on TikTok?”. Then I bent my joints backwards in ways they aren’t supposed to go. I was horrified to find out that I’m not supposed to be in pain 24/7. My ankles aren’t supposed to sprain weekly. My periods aren’t supposed to keep me in bed and make me feel faint. I really need to stop asking, “that’s not normal?” because the answer has always been an astonished, “NO!”
I hope this is it. I hope she’s the one. I hope this is the light at the end of a string of uninformed doctors.

📸 Aleks Vu