Bubba's Light

Happy Mother’s Day 💜
To the mothers in our rare disease community—those celebrating milestones, facing challenges, advocating fiercely, and loving deeply—we see you.

And to those carrying grief alongside love, we honor you too.

You are not alone today. 💕

Tonight, Bubba’s Light continues to honor all bereaved mothers. You are seen, deeply loved, and never alone. We are holding space for you this evening and sending wishes for peace and comfort.

If you’re thinking of a bereaved mother tonight, a simple message, speaking her child(ren)’s name, or sharing a memory can be a meaningful way to honor her and her child(ren).

For those who want to better support bereaved parents, we’re sharing a helpful resource below.

Link to Resource:https://thegfpd.org/wp-content/uploads/2025/11/CARE-Card-7.pdf

Bubba's Light was honored to support four rare families in attending the GFPD Southeast Regional Meetup in Atlanta this past weekend.

For rare disease families, these spaces transform isolation into community. They create opportunities to connect with others who truly understand—to share experiences, give and receive support, and learn side by side.

They are also where progress happens—bringing together families, researchers, and professionals in conversations that matter. Conversations where families are not just heard, but valued as partners in progress.

We are deeply grateful to our community for making opportunities like this possible. Because of your generosity, we’re able to help families access moments like these—moments that truly matter and make a difference in the lives of those impacted by rare diseases.

Quiz time! Which animal is the symbol for rare disease?

If you chose option C, you’re right—it’s the zebra! 🦓 Zebras remind the medical community to look beyond the “common” diagnosis—because sometimes, when you hear hoofbeats, it really is a zebra.

Today, on Rare Disease Day (February 28th), help us raise awareness by showing your stripes 🦓 Together, we can shine a light on rare diseases and the millions of families they impact.