Finding Strength in Autism

My youngest daughter Reagan who has autism, also suffers from uncontrolled absence seizures. We have spent many years in and out of the hospital adjusting meds to control the seizures. She would go a few months with good progress to have the seizures increase over time. She would have on average 40-60 a day even while she slept. Her metabolism is so high that she is on 3-6 seizure meds at a time. Because of these seizures meds all being stimulates as well she cannot gain weight. She is now 13 years old and only weights 60 pounds. She eats many times throughout the day but gets full fast and can’t eat enough in a day. We are going to the doctor today to find out if she will need to be hospitalized to put weight on her. However, I want answers and clarity. I have another daughter with autism who needs me too and I want to know the plan going forward. I don’t want to spend a long time in the hospital for her to continue down this road if meds continue to be a problem and weight. I just don’t believe doctors always have the best interest of our children. Why has it gone on this long and no intervention? I’ve brought this issue up many times and no one said anything or acted concerned until a new dr came along. Now, it’s a matter of life and death. Unacceptable to me.