Hanks Place

HE’S IN!!! Just got the call from the study manager at Texas Children’s - Henrys scope showed high enough levels of eosinophils in at least two places and he is in the dupixent trial!! Thank you all so much for your thoughts, vibes and prayers for our son !!💙☮️

Here we are nine years later… after hearing things like “incurable,untreatable”, “new disease, not a lot of research,” “in its infancy,” “may be the youngest we’ve seen with this yet,” amd my favorite- “well, let’s try this and this for a while…”
Today we’re on the verge of an ACTUAL TREATMENT! One that has had significant findings in children 12 and up. Henry is in his final phase of possibly being approved for the 12 and under study. He’s just been taken back for what will be his most intrusive biopsy but one with, hopefully, the most impactful results.