CLOVEs Syndrome Community

CLOVEs Syndrome Community

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06/15/2026

The application for CSC's 2026-27 Back-to-School Bucks program is open until June 30th. If you or your child with CLOVES are going back-to-school in the fall, don't miss your chance to apply.

CSC Back to School Bucks is a cash award which has been established to assist individuals impacted by CLOVES with expenses directly related to returning to school or college.

Back to School Bucks expenses may include custom-made or modified apparel including shoes, clothing and school uniforms, as well as adaptive equipment, which add up quickly this time of year.

Visit https://clovessyndrome.org/apply-for-back-to-school-bucks/ to learn more and apply.

To qualify for CSC Back to School Bucks, you or your child must be diagnosed with CLOVES Syndrome.

06/09/2026

What is CLOVES Syndrome? CLOVES is an acronym for the list of common features associated with this ultra-rare, non-hereditary genetic syndrome:

πŸ€ Congenital

πŸ€ Lipomatous

πŸ€ Overgrowth

πŸ€ Vascular anomalies

πŸ€ Epidermal nevi

πŸ€ Scoliosis or Skeletal anomalies

CLOVES Syndrome is the result of a mutation in the PIK3CA gene that occurred in utero. Because of this, it falls under an umbrella of conditions called PROS (PIK3CA Related Overgrowth Spectrum) There are very limited treatment options for people with PROS conditions and the treatments that do exist don’t work for everyone.

CLOVES Syndrome Community is a 501(c)3 non-profit dedicated to improving the lives of those affected by CLOVES and PROS through support, education, and research. To learn more about our organization, vision for the future, and accomplishments so far, visit www.clovessyndrome.org

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