Lucas John Foundation

Lucas update:

He’s doing much better, ER docs gave him a dose of steroids and started him on breathing treatments. Viral panel came back as rhino and entero viruses, of course it’s a common cold 🙃 so far we haven’t needed high flow oxygen, but they have the cannula on him just in case. Hoping we don’t have to stay long. Thank you everyone for your prayers and reaching out to see how you can help, it means a lot 🫶🏼

For those with my location, we are pulling into OU Children’s ER now. Lucas started feeling bad yesterday afternoon and progressively got worse. We started oxygen at 2:30 this morning, but he continued to decline. We called the ambulance to get us here quick, and get him started on high flow oxygen. Pray for Lu 🙏🏼🫶🏼

We're excited to announce that Lucas John Foundation is the fiscal sponsor for the Rare as One Grant awarded by the Chan Zuckerberg Initiative! We're so excited to be able to further the mission of NKH Crusaders and ready to get to work learning how we can better support patients and caregivers of NKH!

Thank you so much to the Newbold family for putting this match together! Almost half a million dollars raised for NKH in such a short period of time!

"📢 We need your help! Join us in the Colorado Day Blitz to support groundbreaking NKH research. 🧪 Every dollar counts and will be matched to double the impact! Help us reach our goal of $35,000 and bring hope to those suffering from this rare disorder. Swipe up to donate or visit our link in bio! 🌍
bit.ly/CODAYBLITZ