Team Morgun

Today was rough for us. Insides are a mess, inflammation, redness and bumps now we wait to see if its eos which means would have to pull his foods and heal him, or its major reflux which means his prevacid isnt working anymore. So we will know more on thursday. Feeling defeated and hating eos.

Well home sweet home for the week in good ol ohio. What a long day, we arrived at a out 615pm ohio time and what a long long day. My poor baby leg and ankle and foot again was acting up, and alot of it this time was due to 2 plane rides and an hour car drive. You couldnt even see his toes. He was in such pain, as I was checking into hotel he sat in the stroller putting his head in his blanket in tears. I felt horrible for him. He is now laying down elevating with pillows as I am getting us all onpacked and cooking dinner in the kitchen. It will be off to bed soon. We are drained been up since 330am cali time. Tomorrow Morgun undergoes his 31st sedation at age 6 and it never gets easier. This trip has showed me how truly blessed I am to have my mom normally with me, its only day one and I am wiped out. Missing her but its what we do. My heart is heavy though with what tomorrow will bring, I know its not in my hands and I know God has a plan, but its not easy. I pray tomorrow we dont have to pull one of gunnys 4 foods he has. I know the lord was with me all day today, getting me thru the airports and navaigating everything. There was even help right there waiting for me to get my lugguage. I didnt stress at all cause I prayed and left it in his hands. Security frazzled me, but I just took a deep breath and knew I had his strength. Lets just say I was patted down for some applejuice. Lmao. So tomorrow if anyone wants please wear your team Morgun shirt, to know u are thinking of him and praying. Please post a picture if u can so it will cheer him up!! As u can see he is comtent playing. Love u all.

My heart is warmed by some of my Friends who I love and adore who have supported me and this journey from day one and they never turned there back on us. I love them more than words can say. You all know who you are out there. I wish I could do more, But just know that you will always hold a special part in this journey. This is all blogged and Gunny will always know now and when he is older, who was there and who made a difference in his life. He is doing well because of you all who have supported us to come out here and get the best treatment ever. I'm proud to announce that again Children's Cincinnati Hospital Ohio has ranked number 3 best hospital in the Nation. It also just ranked Number 1 best in the nation for Pulmonology/ Cystic Fibrosis and ranked Number 2 best hospital in the nation for Pediatric Cancers with one of the best Cancer Centers. We truly are amazingly blessed to be where we are at for this little man. Thank you again To Amazing Team Morgun supporters, We cant wait to see the love and support and pictures today of Our shirts and Purple. I would like to make a video so please tag us in your photos.