SOS-- Senior Options & Solutions

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There comes a point in dementia caregiving when you realize…

You are no longer reading sentences.

You are decoding… letters.

Lots and lots of letters.

You’ll be scrolling along just fine and then suddenly see something like:
“MWD in MC, ADLs declining, possible UTI, check with POA before SNF transfer…”

…and think…

I’m sorry — what now?

So I’m sharing this here in case it helps someone else translate what can feel like a whole new language.

No commentary. No advice.
Just a simple “here’s what SOME of those letters mean” list:

ORGANIZATIONS & SERVICES
AA – Alzheimer’s Association
AAA – Area Agency on Aging
ADHC – Adult Day Health Care
ADRC – Aging and Disability Resource Center
ADS – Adult Day Services
HHA – Home Health Aide
IRF – Inpatient Rehabilitation Facility
LTC – Long Term Care
MC – Memory Care
NH/SNF – Nursing Home / Skilled Nursing Facility
SAR – Sub Acute Rehab
SNF – Skilled Nursing Facility

MEDICAL CONDITIONS
AACD – Aging-Associated Cognitive Decline
AAMI – Age-Associated Memory Impairment
AD – Alzheimer’s Disease
ADRD – Alzheimer’s Disease and Related Dementias
CBS – Corticobasal Syndrome
CS – Capgras Syndrome
D – Dementia
EOA – Early Onset Alzheimer’s
EOD – Early Onset Dementia
EOL – End of Life
FTD – Frontotemporal Dementia
LBD – Lewy Body Dementia
MCI – Mild Cognitive Impairment
NPH – Normal Pressure Hydrocephalus
PCA – Posterior Cortical Atrophy
PD – Parkinson’s Disease
PPA – Primary Progressive Aphasia
TBI – Traumatic Brain Injury
TIA – Transient Ischemic Attack
UTI – Urinary Tract Infection
VD – Vascular Dementia
bvFTD – Behavioral Variant Frontotemporal Dementia

DAILY LIFE & CARE TERMS
ADL – Activity of Daily Living
IL – Independent Living
POA – Power of Attorney

FAMILY / RELATIONSHIP SHORTHAND (the ones that really make you pause at first 😄)
DW - Dad with
FILW - Father-in-law with…
FW - Father with…
GFW - Grandfather with…
GMW - Grandmother with…
HW - Husband with…
LOW - Loved one with…
MILW - Mother-in-law with…
MW - Mother with…
PW - Person/parent with…
WW - Wife with…

SO WHEN YOU PUT THE RELATIONSHIP WITH THE MEDICAL CONDITION YOU GET…(list is NOT comprehensive…)

DWA – Dad with Alzheimer’s
DWD – Dad with Dementia
FILWD – Father-in-Law with Dementia
FWD – Father with Dementia
FWLBD – Father with Lewy Body Dementia
GFWD – Grandfather with Dementia
GMWA - Grandmother with Alzheimer’s
GMWD – Grandmother with Dementia
HWA - Husband with Alzheimer’s
HWD – Husband with Dementia
HWVD - Husband with Vascular dementia
HWLBD - Husband with Lewy Body dementia
LOWD – Loved One with Dementia
MILWD – Mother-in-Law with Dementia
MWA – Mother with Alzheimer’s
MWD – Mother with Dementia
MWFTD – Mother with Frontotemporal Dementia
PWD – Person/Parent with Dementia
WWA - Wife with Alzheimer’s
WWD – Wife with Dementia
WWFTD - Wife with Frontotemporal Dementia
WWLBD - Wife with Lewy Body dementia

If your brain has ever felt like it needed a decoder ring just to read a post or follow a conversation…

you’re not alone.

It’s a whole language most of us never expected to learn.

And yet… here we are. 💜