Rare Strides

We celebrate Rare Disease Day in honor of more than 300 million people living with rare diseases worldwide! We stand with you, fight beside you, and strive to embrace each day as a new opportunity to make rare visible in healthcare to support the rare community we love.

"If opportunity doesn't knock, build a door". Anonymous
Nothing extraordinary or of great value is ever produced in a comfort zone.
Life's tests build the testimony; step out in faith willing to make a positive difference for others...that is a life well lived." --Beth Nguyen, RN Founder

Love comes in many forms…
It’s the hug from a hospital bed.
The courage in a diagnosis.
The strength of a family that refuses to give up.

This Valentine’s Day, we’re celebrating the bravest hearts we know — our rare warriors. 💙

Through the mission of Rare Wish and the innovation of Rare STRIDES, we continue to make rare visible, fund life-changing wishes, and create pathways to hope, healing, and community.

And of course… delivering love one hug at a time is our favorite ambassador — 🧸 Sunny the Rare Bear.

Because every rare patient deserves to feel seen, supported, and deeply loved.

💙 Happy Valentine’s Day from all of us at Rare Wish & Rare STRIDES

Together we can make rare visible in healthcare! If you are a stakeholder in the rare community, we invite you to become a Code Rare Community partner! You are invited to watch a powerful webinar about Code Rare on October 14th!

The goal of Code Rare is to provide medical teams in both hospital and pre-hospital environments awareness level training on a variety of rare diseases including foundational training on the identification, diagnosis, and management of these diseases and the utilization of Code Rare Classroom, Continuing Education, and Rare Model of Care tool.

The mission of Code Rare is to inspire medical teams to collaborate with rare experts, nonprofits, patients, and families to advance understanding about newborn screening, next steps, diagnostics and patient-centered clinical care delivery for rare diseases.

www.rarestrides.com/contact-us