A Fashionable Event

A Fashionable Event

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05/08/2013

This is going to be AWESOME! Details to follow!

Rock 2 the Rescue Vivian suffers from a rare and incurable seizure disorder called Dravet syndrome. This genetic disorder causes children like Vivian to have numerous types of seizures, including life threatening tonic clonic seizures that last up to 40 minutes. The rescue medicines used to stop these seizures can, and have, caused Vivian to stop breathing. Additionally, pharmaceuticals used to prevent Vivian's seizures are highly addictive and have a complex list of side effects, including developmental impairment.
- See more at: http://www.lettersforvivian.org/ .hhGWc7kw.cZyvEmYJ.dpuf

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