Lissencephaly Awareness

Mackenzie's weekly report, they absolutely love having her there. I guess they will call us with her next admission date.

Mackenzie had a really great day again today, Dan the physiotherapist said she was able to stand in the standing frame for 12 min which is really good for her first time. She had Mac n cheese for lunch and really liked it almost ate the whole bowl they said. She had a 30 min nap today. Found out today that Mackenzie has elevated triglycerides and low HDL, not exactly sure what it means but the pratten Dr is going to pull up the report and let me know tomorrow what it means.

Had our tour with pratten today which went really well!! they all loved mackenzie and can't wait to start working with her, she starts on Nov 14thand I think it will be great they will be doing intensive therapy. Also visited Dr. Danby today and her hip xray came back great and she increased her acid reflux meds. She has a bit of granulation tissue and yeast around her gtube site so she put silver nitrate on it today and a new prescription cream. Mackenzies head is still small and she weighs 35 lbs. She is 2ft 11 she has had a growth spurt lol.